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Old 04-09-2021, 03:35 PM   #136
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cj, thanks for the update.

Hopeful and praying for a smooth process all the way through for both you and your daughter.

I can't begin to imagine what you all have been through over these past many years.

You and your daughter are both heroes in my book.
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Old 04-09-2021, 03:36 PM   #137
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My very best wishes go out to you and your family.
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Old 04-09-2021, 03:41 PM   #138
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Best wishes and God Bless
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Old 04-09-2021, 03:48 PM   #139
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Been a while so wanted to give everyone an update. I get a lot of private messages asking (which I REALLY appreciate!) My daughter is doing well, but her kidneys have failed. We do home dialysis with her several times a week. It is no fun for any of us, but I can't imagine how hard it is for a 25 year old woman to live this way. Even so, she keeps a great attitude and has a fight in her I could only hope to have. She has recently applied for a job with the local pro sports team, not too hard to figure out, and made it through three rounds of interviews. An email was sent today and I'm nearly sure it means she made it, has one final interview with a VP but reads like she has been selected. Fingers crossed!

All that said, she needs a kidney transplant and I'm first in line to donate. We found out last month I am a match. I have to have some tests Thursday to make sure I'm healthy enough to donate and don't have any undiscovered conditions. There is nothing I want more than to be able to give her a normal life back, so please think good thoughts that all goes well! If it does, transplant will most likely be in early June. Both of my other children are willing donors too, but if I can avoid them having to do it, that makes it a double win for me.

I'll keep everyone updated when I find out my test results!
Wow, I'm hoping this works out for both of you and family as well. We have some experience with a neighbor girl, friend of my daughter had kidney failure in her early teens. She recd. one from her dad, and a second one from an aunt, when the first one finally failed. She married and raised a beautiful daughter, who is our neighbor now. My wife and I both took her for dialysis treatments after her mom passed at 50 to cancer. She was so tough and never whined or complained. It made me realize what toughness really is. Prayers for you all.
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Old 04-09-2021, 04:05 PM   #140
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All the best to you and your family!!
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Old 04-09-2021, 04:09 PM   #141
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Been a while so wanted to give everyone an update. I get a lot of private messages asking (which I REALLY appreciate!) My daughter is doing well, but her kidneys have failed. We do home dialysis with her several times a week. It is no fun for any of us, but I can't imagine how hard it is for a 25 year old woman to live this way. Even so, she keeps a great attitude and has a fight in her I could only hope to have. She has recently applied for a job with the local pro sports team, not too hard to figure out, and made it through three rounds of interviews. An email was sent today and I'm nearly sure it means she made it, has one final interview with a VP but reads like she has been selected. Fingers crossed!

All that said, she needs a kidney transplant and I'm first in line to donate. We found out last month I am a match. I have to have some tests Thursday to make sure I'm healthy enough to donate and don't have any undiscovered conditions. There is nothing I want more than to be able to give her a normal life back, so please think good thoughts that all goes well! If it does, transplant will most likely be in early June. Both of my other children are willing donors too, but if I can avoid them having to do it, that makes it a double win for me.

I'll keep everyone updated when I find out my test results!
As PA rightly said, both you and your daughter are heroes. Both very courageous. Keep up the good fight. You'll both be in my prayers.
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Old 04-09-2021, 04:11 PM   #142
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Originally Posted by cj View Post
Been a while so wanted to give everyone an update. I get a lot of private messages asking (which I REALLY appreciate!) My daughter is doing well, but her kidneys have failed. We do home dialysis with her several times a week. It is no fun for any of us, but I can't imagine how hard it is for a 25 year old woman to live this way. Even so, she keeps a great attitude and has a fight in her I could only hope to have. She has recently applied for a job with the local pro sports team, not too hard to figure out, and made it through three rounds of interviews. An email was sent today and I'm nearly sure it means she made it, has one final interview with a VP but reads like she has been selected. Fingers crossed!

All that said, she needs a kidney transplant and I'm first in line to donate. We found out last month I am a match. I have to have some tests Thursday to make sure I'm healthy enough to donate and don't have any undiscovered conditions. There is nothing I want more than to be able to give her a normal life back, so please think good thoughts that all goes well! If it does, transplant will most likely be in early June. Both of my other children are willing donors too, but if I can avoid them having to do it, that makes it a double win for me.

I'll keep everyone updated when I find out my test results!
Badass Dad! Just like your old man......
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Old 04-09-2021, 04:49 PM   #143
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Badass Dad! Just like your old man......
Amen to THAT!

Prayers for your whole family.
I sleep better knowing guys like CJ are out there - there s still hope.
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Old 04-10-2021, 12:16 AM   #144
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Thoughts and Prayers please

I hope and pray for your daughter and your family C.J. I have never met you in person, but I know that you are among those few good souls that one encounters in life, and the apple has not fallen far from the tree. God bless you and your family.
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Old 04-10-2021, 12:19 AM   #145
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best wishes for you and your daughter for everything to go smoothly.
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Old 04-10-2021, 07:59 AM   #146
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I have a very hard time clicking this thread. The best news is, that is has really been mostly good news. If you ever find that you might need assistance, please feel free to reach out.
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Old 04-10-2021, 08:17 AM   #147
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Best Wishes to all of your family CJ, and I sincerely hope the transplant goes well. I did have a question though. Since it seems Lupus damaged her own kidneys, what are the long term expectations for your kidney inside of her? Said another way, can she expect that kidney to last a lifetime or 10 years? Maybe they have new medicine now that can prevent the sort of damage that was done to her own kidneys. In any case, I cannot imagine being 25 and on dialysis 3 times a week. You're doing a great thing and giving her hope for the future.
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Old 04-10-2021, 08:26 AM   #148
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Thanks for the update CJ. I'm keeping you, your daughter and family in my prayers and hoping for all the best.
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Old 04-10-2021, 09:22 AM   #149
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Good luck to you and your little girl, CJ.

Prayers and well wishes in every way possible.
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Old 04-10-2021, 10:51 AM   #150
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