Where's Raybo?

[deathandgravity]

I don’t need to tell you the prognoses for glioblastoma… , but I can tell you it is beatable. I was diagnosed with a glioblastoma, told to go home, get my affairs in order & say goodbye to my love ones.
F**K that!
Fight! Never give up, get aggressive & screw the odds! I won’t go into the details of my fight, but it was long & I still live the scars today, but I am going on 20+ grateful years of being cancer free. (granted.. my wife claims my brain is slightly fried)

My thoughts are with you & your family

Take care!

[raybo]

Originally Posted by deathandgravity

I don’t need to tell you the prognoses for glioblastoma… , but I can tell you it is beatable. I was diagnosed with a glioblastoma, told to go home, get my affairs in order & say goodbye to my love ones.
F**K that!
Fight! Never give up, get aggressive & screw the odds! I won’t go into the details of my fight, but it was long & I still live the scars today, but I am going on 20+ grateful years of being cancer free. (granted.. my wife claims my brain is slightly fried)

My thoughts are with you & your family

Take care!

Yeah, the UT Southwest 3 man neuro-surgical team told me to not even Google it, just get ready to fight, and that is exactly what I'm doing, already.

[castaway01]

Sending you positive vibes Raybo, and best wishes that you beat this thing. Someone has to cash all those superfectas and I'm expecting it to be you.

[NorCalGreg]

Hang in there Raybo

[lansdale]

Raybo,

Very sorry to hear about your illness and wish you and your doctors the best in the battle against it. Everyone on this site knows that you as someone with the positive attitude and mental strength needed to prevail against a tough opponent.

If it's any inspiration, I'll mention the example of a close friend, with a condition very similar to your own, who lived fifteen years beyond the diagnosis of his doctors at Memorial Sloan-Kettering. I wish the same and much more for you.

Best,

lansdale

[BCOURTNEY]

I have family members with glioblastoma - it can be beat, get well soon.

[Track Phantom]

Absolute best wishes and thoughts to your recovery!

[FrankieFigs]

Fight it hard and head on Raybo!! You got this!!!

[whodoyoulike]

When I first wished that you get well, I wasn't aware just how serious your situation was. It's been a few days now and I've been able to think about it. I hope you have several people not just one who you can rely on for support. Having been on both sides, I now realize it's very important since no one individual would have the skills which you need over the next months. Also, remember to be patient and hopefully, they'll have patience with you.

Wishing you my very best.

[fiveouttasix]

Raybo, my prayers are with you and your family.

[raybo]

We had our radiology oncology consult Tuesday and were really impressed with the staff's obvious expertise and knowledge of my specific tumor type. Will go back on the 23rd for treatment consent processes, then prep for the 1st session of radiation and chemo. Initially we're looking at 34 treatments, Monday through Friday for about 7 consecutive weeks. The only negative I see are the transportation costs related to the daily 130 mile round trips from home to the Dallas VA facility. Lots of gas and wear and tear on our "used" vehicle. The travel itself should pose little problem (assuming the treatments aren't overly tasking physically, of course), as I drove over the road for a time back in the 90's.

Samara's and my determination and resolve to beat this thing remain xtremely high, so barring the introduction of additional, unexpected complications, we feel highly confident and in excellent spirits.

Thanks again for all of your expressions of support and , of course, your most welcome prayers!

[tucker6]

Originally Posted by raybo

We had our radiology oncology consult Tuesday and were really impressed with the staff's obvious expertise and knowledge of my specific tumor type. Will go back on the 23rd for treatment consent processes, then prep for the 1st session of radiation and chemo. Initially we're looking at 34 treatments, Monday through Friday for about 7 consecutive weeks. The only negative I see are the transportation costs related to the daily 130 mile round trips from home to the Dallas VA facility. Lots of gas and wear and tear on our "used" vehicle. The travel itself should pose little problem (assuming the treatments aren't overly tasking physically, of course), as I drove over the road for a time back in the 90's.

Samara's and my determination and resolve to beat this thing remain xtremely high, so barring the introduction of additional, unexpected complications, we feel highly confident and in excellent spirits.

Thanks again for all of your expressions of support and , of course, your most welcome prayers!

Raybo,

Ask the hospital if they are associated with any free or low cost housing in the area. Many hospitals have "cancer houses" for those who cannot afford hotels for seven weeks or are very far away. When my wife was sick in Charleston, SC, they had a cancer patient lodging as well as B&B's that gave a really good patient rate. Something to check out.

[mikesal57]

Originally Posted by tucker6

Raybo,

Ask the hospital if they are associated with any free or low cost housing in the area. Many hospitals have "cancer houses" for those who cannot afford hotels for seven weeks or are very far away. When my wife was sick in Charleston, SC, they had a cancer patient lodging as well as B&B's that gave a really good patient rate. Something to check out.

Exactly what I was thinking...
Also call some hotels, in the area, and ask for a package for the amount of time you need..
hang in there my friend..

mike

[tucker6]

Originally Posted by mikesal57

Exactly what I was thinking...
Also call some hotels, in the area, and ask for a package for the amount of time you need..
hang in there my friend..

mike

... and don't be afraid to mention what you're there for. Many hotels will be charitable under your circumstances. Got into one hotel (Holiday Inn Express) at 50% of the going rate, and that wasn't even a long term deal. Just a couple nights at a time.

The cancer wing of the hospital I am familiar with had what they called a concierge. That person will have the list of lodging that is giving discounts and how to apply to the "cancer house" if they have one. The long treatment time (7 weeks) as well as your distance makes you a prime candidate for such a "house". Apply early for a slot.

[pandy]

Get well soon Raybo. Our thoughts, wishes, and prayers are with you.