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03-02-2020, 10:37 PM
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#31
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Registered User
Join Date: Jan 2006
Posts: 1,506
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Very sorry to hear this news cj. I know a couple of people who suffer from lupus and am aware of the ongoing difficulties it adds their lives. And the emotional toll it takes, not only on the patient, but on the entire family is not the least of them.
Although still going through testing protocols, there is a new drug supposedly showing greater promise at relieving flares and other inflammatory symptoms than those currently in wide use, called anifrolumab -- possibly your physicians might have some idea when it might become available, should it continue successfully through the clinical testing process. The link below details some of the test results.
Sending best thoughts to you, your daughter, and your family during this difficult time.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6514126/
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03-03-2020, 12:02 AM
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#32
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Registered User
Join Date: Jan 2011
Posts: 2,357
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My prayers go out to your daughter.
__________________
There are more things in Heaven and Earth Horatio, than are dreamed of in your philosophy.
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03-03-2020, 12:14 AM
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#33
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Registered User
Join Date: Nov 2009
Location: Folsom, CA
Posts: 3,517
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Good luck, CJ. And good luck to your daughter. May she come home healthy and soon.
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03-03-2020, 03:01 AM
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#34
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Registered User
Join Date: Nov 2001
Location: Norfolk VA
Posts: 6,246
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God bless and heal your daughter and your family.
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03-03-2020, 05:49 AM
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#35
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Registered User
Join Date: May 2008
Location: CT
Posts: 838
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My prayers and healing vibes heading your daughters way CJ.
__________________
The glass is half full!
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03-03-2020, 10:40 AM
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#36
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Grinding at a Poker Table
Join Date: Nov 2007
Posts: 4,902
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My prayers were added as well. GOD welcomes and encourages our prayers and they can be very powerful.
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03-03-2020, 11:20 AM
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#37
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dGnr8
Join Date: Aug 2003
Location: Niagara, Ontario
Posts: 3,023
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Very sad to hear this news. She is in our thoughts as are you and the rest of the family. Stay strong and God bless.
__________________
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The great menace to progress is not ignorance but the illusion of knowledge - Daniel J. Boorstin
The takers get the honey, the givers sing the blues - Robin Trower, Too Rolling Stoned - 1974
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03-03-2020, 12:39 PM
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#38
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@TimeformUSfigs
Join Date: Jan 2002
Location: Moore, OK
Posts: 46,828
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Thanks again everyone...
quick update, no dialysis today which is a good thing, numbers are improving. Hopefully just a few more days in the hospital, fingers crossed.
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03-03-2020, 12:46 PM
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#39
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crusty old guy
Join Date: Aug 2003
Location: Snarkytown USA
Posts: 3,915
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That's very good news. I have added her to my nightly prayers. Sending positive vibes her way.
__________________
"Don't believe everything that you read on the Internet." -- Abraham Lincoln
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03-03-2020, 04:59 PM
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#40
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Registered User
Join Date: May 2007
Posts: 81
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My prayers go out to your daughter.
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03-03-2020, 05:11 PM
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#41
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Unreconstructed
Join Date: Sep 2005
Location: Appalachia
Posts: 6,645
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Sending my prayers as well. Faith does some wonderful things.
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Deo Vindice
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03-05-2020, 10:53 AM
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#42
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@TimeformUSfigs
Join Date: Jan 2002
Location: Moore, OK
Posts: 46,828
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In kind of a holding pattern now as she is being monitored without getting dialysis to see what happens. Suspect our time here is not going to be ending any time soon. 
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03-05-2020, 12:06 PM
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#43
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Registered User
Join Date: Mar 2005
Location: Queens, NY
Posts: 20,606
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Forgive the ignorance, but did the lupus cause what may have been a temporary kidney issue that has been corrected and that's what they are waiting on. The doctors just want to make sure everything is OK before releasing her?
What a tough situation.
I feel terribly for her, you, your wife, and the rest of the family.
Praying for a quick release.
__________________
"Unlearning is the highest form of learning"
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03-05-2020, 01:44 PM
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#44
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@TimeformUSfigs
Join Date: Jan 2002
Location: Moore, OK
Posts: 46,828
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Quote:
Originally Posted by classhandicapper
Forgive the ignorance, but did the lupus cause what may have been a temporary kidney issue that has been corrected and that's what they are waiting on. The doctors just want to make sure everything is OK before releasing her?
What a tough situation.
I feel terribly for her, you, your wife, and the rest of the family.
Praying for a quick release.
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Thanks buddy.
Definitely lupus, but not temporary. She has SLE, described here. She also has the one listed right below it as well as Sjogren's Syndrome. Words can't describe the heartbreak from seeing your kid suffer.
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03-06-2020, 02:48 AM
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#45
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Registered User
Join Date: Aug 2017
Posts: 3,641
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Quote:
Originally Posted by cj
Definitely lupus, but not temporary. She has SLE, described here. She also has the one listed right below it as well as Sjogren's Syndrome. Words can't describe the heartbreak from seeing your kid suffer. |
I am so sorry to hear this. Of course there are no words to describe what you are going through.
Tell your daughter there's a whole Team Lindsay made up of people she doesn't know, who are out here praying and thinking of her.
Last edited by clicknow; 03-06-2020 at 02:49 AM.
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